What C-OPN Means to Me ?

I joined the Parkinson’s Community Advisory Committee (PCAC) to give back to our Parkinson’s community. This committee offers a vital platform to learn about the latest research that directly impacts our daily lives and contributes to finding a cure for Parkinson’s disease. Through the PCAC, I feel empowered to be an active advocate, influencing individuals and organizations across Canada about the urgent need to empower people living with Parkinson’s.

My Contribution to the Network and PCAC

The Canadian Open Parkinson Network (C-OPN) plays a crucial role in connecting researchers and studies with individuals living with Parkinson’s. C-OPN helps to accelerate communication among scientists and ensures the timely sharing of vital information among all stakeholders. For me, C-OPN offers hope in the quest for a cure by efficiently linking researchers with PD participants.

I’m eager to contribute my unique skills and experiences to this network and especially to the PCAC. As a professional mime and illustrator, combined with my background in education, I enjoy using these abilities to support my fellow Parkinson’s community members in any way I can.

Include links to different initiatives that I’m involved in:

http://MimeOverMind.com

https://parkinsonseurope.org/what-parkinsons-feels-like/

https://www.michaeljfox.org/news/mjff-guest-blogger-barbara-salsberg-mathews-re-illustrating-5-stages-parkinsons-women

What C-OPN Means to Me ?

I decided to join the PCAC in September 2023 because I want to contribute to the Parkinson’s community. My participation within this group gives me a sense of purpose and fulfillment. Finding out more about the cause of Parkinson’s is really important for me. My unique journey could help for contribute to greater understanding of Parkinson’s.

My Contribution to the Network and PCAC

The C-OPN organization plays a crucial role for research participation and recruitment. Many patients are unaware of Parkinson’s trials and research in general. This organization desires to make a positive impact for the advancement of Parkinson’s. I strongly believe the community engagement is very beneficial.

My unique personal experience with Parkinson’s can help contribute to better understanding, and knowledge of this complex disease. My feedback can be useful for participation on different projects. Involving patients in the research process brings a different perspective for the research community.