Contact Us
Our Location

Health Sciences Centre, University of Calgary, Calgary, Alberta

Telephone Number

(403) 210-7570

Email Address

national.manager@copn-rpco.ca

About Us

Mission and Objectives

Mission

The main mission of the Canadian Open Parkinson Network (C-OPN) is to unite and mainstream research efforts to more efficiently find ways to treat Parkinson’s disease. To do this, C-OPN provides the platform where the stakeholders join forces so that:

  • Patients with Parkinson’s disease across Canada can support and take part in research
  • Researchers and clinicians across Canada and beyond collaborate and work on solving the unanswered questions about Parkinson’s disease and related disorders
  • Community partners can invest to accelerate Parkinson’s disease research

This collaboration and investment enables the creation of three distinct infrastructures:

  1. National Patient Registry: linking potential research participants to scientists across Canada conducting research studies and clinical trials
  2. De-identified Database: capturing demographic, medical, and cognitive patient information over time as well as brain imaging data to support cutting edge scientific investigations
  3. Biobank: collecting biological specimen (eg. blood) and storing them in a research biobank to enable genetic and other scientific analyses

Large-scale and multidisciplinary research projects are possible because the C-OPN offers multisite recruitment and studies. C-OPN makes its databases open to investigators who request it.

Objectives

C-OPN aims to be:

  • A platform whereby participants living with Parkinson’s disease and related disorders are connected with scientists across Canada to participate in research studies and trials
  • A comprehensive database that will
    • accelerate knowledge and improve the understanding of this multifaceted disease
    • facilitate large-scale projects and trials with a variety of techniques and analysis methods with high statistical power

C-OPN Structure

Executive Committee

Coordinator Committee

Director’s Message

It is with great pleasure and deep commitment that I am taking on the leadership of the Canadian Open Parkinson Network (C-OPN) together with Dr. Edward Fon who acts as co-director. I am happy and honoured to spearhead this cutting-edge and meaningful initiative.

The C-OPN will facilitate rapid sharing of data and samples with Canadian and international investigators and industry partners. Canada is leading the world with several new large-scale initiatives for data sharing in neuroscience, Open Science, and artificial intelligence. This network will harness these efforts in order to promote multidisciplinary collaborations among Parkinson’s researchers in Canada; it enables large-scale projects, not possible at a single centre.

In addition, trainees will have access to an unprecedented registry and database in Canada as well as more opportunities for collaborations and exchanges.

Through these measures, C-OPN will drive more efficient research, accelerate our understanding of the diverse nature of Parkinson’s, and lead to novel treatments for those living with the disease. It will also allow Canada to take a leadership position in Parkinson’s research.

I reach out to you and the broad community in the hope that C-OPN will contribute to win the fight against Parkinson’s disease.


Oury Monchi, PhD
Director, Canadian Open Parkinson Network

Contact Us

Director
Dr. Oury Monchi: oury.monchi@ucalgary.ca

National Manager
Dr. Catherine Normandeau: national.manager@copn-rpco.ca