Why fund the Canadian Open Parkinson Network?
C-OPN brings together Canada’s best in Parkinson’s research and gives them a platform to share information and make new connections. The network gives researchers access to unprecedented data and supports large-scale, multidisciplinary projects that would not be possible at a single research site. This initiative builds on and benefits from the existing and highly successful model of the Québec Parkinson Network (QPN). QPN is currently helping to run over 60 studies in 15 centres and has 1400 patients registered.
Learn from our participants about why C-OPN matters to them:
“The Parkinson’s research registry is important and should be recognized. It not only records data, but also gives out information that can guide future research. I enjoy working with the researchers and being part of a larger community of volunteer participants. I want to pay back prior study participants, who helped research that I benefit from and now I can pay it forward to future generations. This is your chance to be part of the future knowledge of Parkinson’s disease.”
– Eldean Kathol, 84, diagnosed 30 years ago
Linda Bérard with her partner and caregiver Yves Lafortune
“It was early in the summer of 2013, at the age of 44, that we received the shocking news that I had Parkinson’s disease. And it was shocking. A total Knock Out … .3,2,1 out! Our life was turned upside down, and we sought to better understand this insidious disease that invades me. When Dr. Fon told us about the Quebec Parkinson Network [now linked to the Canadian Open Parkinson Network], I registered without hesitation. As parents (and now grandparents), our greatest wish is to win the fight against this chronic and degenerative disease so that generations following us will speak about Parkinson’s as a curable disease. To date, I have participated in several research protocols and, to the best of my abilities, I will continue to do so. ”
– Linda Bérard, diagnosed in 2013
“The Calgary Parkinson Research Initiative [now linked to the Canadian Open Parkinson Network] was well organized and comprised of two site visits of 3 hours each. The research coordinators were well prepared and this made participation enjoyable. I consider it a privilege to have the opportunity to advance research in Parkinson’s disease. Get involved… What are you waiting for?”
– Laurine Fillo, 55, diagnosed in 2003
How to become a funder?
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