Why I joined and what does it mean to be part of C-OPN ? As a caregiver to my husband who has lived with Parkinson’s since he was 40 years of age I wanted to be more involved on a national level. I have worked with PSBC since he was officially diagnosed and continue to […]
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My name is Manon Day. I am 39 years old. In 2011 at the age of 27, I was diagnosed with young onset Parkinson’s at the Montreal Neurological Institute. Being a rare case of Parkinson’s, I strongly believe participating in research is important. Therefore, I want to contribute for the advancements of knowledge of Parkinson’s. […]
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The Calgary Parkinson Research Initiative [now linked to the Canadian Open Parkinson Network] was well organized and comprised of two site visits of 3 hours each. The research coordinators were well prepared and this made participation enjoyable. I consider it a privilege to have the opportunity to advance research in Parkinson’s disease. Get involved… What […]
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It was early in the summer of 2013, at the age of 44, that we received the shocking news that I had Parkinson’s disease. And it was shocking. A total Knock Out … .3,2,1 out! Our life was turned upside down, and we sought to better understand this insidious disease that invades me. When Dr. […]
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The Parkinson’s research registry is important and should be recognized. It not only records data, but also gives out information that can guide future research. I enjoy working with the researchers and being part of a larger community of volunteer participants. I want to pay back prior study participants, who helped research that I benefit […]
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