My name is Serge Boily, I’m 59 years old, and since March 2019, I’ve been sharing my life with an unexpected roommate: Parkinson’s disease.
When I first received the diagnosis, it felt like getting hit on the head with a sledgehammer.
But after the initial shock, I told myself one thing: “I’m not the one who’s going to bend to this disease- it’s the disease that’s going to have to deal with me.”
So instead of letting myself get knocked down, I decided to get involved, to stay informed, and most importantly- take action!
And then, there is another weapon I’ve chosen against Parkinson’s: sports. For me, it’s more than a passion- it’s medicine. I have practiced boxing, running, walking, and today I continue to play pickleball with enthusiasm. Moving is my way of telling the disease: “You won’t win that easily.”
Why did I join the PCAC?
To take action!
I am a volunteer with C-OPN and part of the PCAC. Together, we work to promote research programs, to clearly explain the available services to patients, and to open doors to clinical trials that, one day, will change everything. I am also a member of Parkinson Capitale-Nationale Chaudière-Appalaches, and I sit on its board of directors. In addition, I volunteer with Parkinson Québec, the provincial organization that oversees all regional branches. For me, it was unthinkable to just sit back and watch life go by.
What does C-OPN mean to me?
The C-OPN network brings together scientists, doctors, healthcare professionals, and people like me who live with the disease every day. Through my involvement with C-OPN and the PCAC, I’ve had the chance to take part in more than 20 research programs in just 5 years.
What can I contribute to this network and especially to this PCAC?
People often say I have a lot of energy, and that I’m a natural unifier. That’s true: I love bringing people together, building connections, and showing that together, we are always stronger.
Through it all, I keep my sense of humor and my smile. Because at the end of the day, Parkinson’s or not, life is still too beautiful to let it slip away. My motto could be: “If the disease forces me to slow down, it should at least know that I’ll keep moving forward, one step at a time, and with a smile.”
Why you should participate in PD research as well:
Because research keeps me positive. It gives me the energy to believe that one day we will find a cure. For me, it’s a way to stay focused and to always look forward.
Curious and always willing to help, I also contribute to other projects that push research forward and give a stronger voice to those living with Parkinson’s.
But my commitment doesn’t stop at meetings and committees. Alongside other determined people, I co-founded the organization ‘Victimes des Pesticides du Québec’ (Victims of Pesticides of Quebec). Our mission: to support, inform, and defend those who, like me, are living with the consequences of an invisible but very real poisoning.
https://www.victimespesticidesquebec.org/
