C-OPN’s mission is to effectively support and facilitate Parkinson’s disease research on both local and national levels by collecting diverse clinical and genetic data as well as detailed information about each participant. Thanks to the invaluable contributions of our participants, we are able to provide extensive datasets for large-scale studies. Below, you will find a brief breakdown of the C-OPN Cohort. For a complete dataset, please submit an individual request through our Research Page (https://copn-rpco.ca/research/)
Who: C-OPN is seeking individuals living with Parkinson’s disease (PD) or Parkinson’s Plus Syndrome (PPS) who are willing to share their experiences with the disease. We are also recruiting healthy individuals interested in contributing to large cohort studies by providing their data.
What: Recruited PD, PPS, and healthy participants will visit one of the C-OPN physical sites for a single day. During this visit, each participant will provide comprehensive information about their health by answering various clinical, demographic, and epidemiological questionnaires. They will be asked to complete physical and cognitive assessments. Participants will also have the opportunity to provide blood samples for genetic analysis.
Where: Participants are recruited in Vancouver, Edmonton, Calgary, Toronto, London, Ottawa, Montreal, Quebec, Lévis, and Halifax. In the next phase, C-OPN will initiate remote recruitment and data collection, allowing any Canadian to join the network.
Note that these statistics were last updated July 2024.
